21 Oct Privacy and Prejudice
Royal Academy of Engineering (UK) (RAEng) 2010
This report presents the findings of the public attitudes research project that was embedded within the wider engagement programme to explore young people’s views on the development of an EPR system in the UK and its use in medical research. A number of questions emerged and recommendations were made based on the findings of this report. The report concludes that these need to be addressed by the National Health Service (NHS), the commissioners and regulators of EPRs, the engineers and developers that will design and build the records systems and databases, and the users and medical researchers that will have access to the data if the system is to be one that has wide support amongst the younger generation. Furthermore, the responses to these questions and recommendations need to be communicated to young people, so that they can make an informed choice about their records.